Reporting on the EHCP process: Bren’s parent participatory research

Reporting on the EHCP process: Bren Prendergast's parent participatory research

For four weeks from late April to early May I conducted a research survey into how things were going with the SEND reforms – specifically, how EHCPs were going. The Lamb Inquiry (2009) stated that we lacked confidence in the … Keep Reading…

Take part in DfE focus groups on Preparing for Adulthood

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A quick post today with an opportunity for parents interested in the Preparing for Adulthood agenda for young people with special needs and disabilities. The Department for Education has asked SNJ and the National Network of Parent Carer Forums to … Keep Reading…

CALL TO ACTION: Let’s work together to stop SEND Tribunal nightmares

bsCTA

Moving the Baker Small Twitter-storm along… Special Needs Jungle would like to use the momentum we have gathered to create a groundswell of SEND community support to: You’ve probably seen by now that BS earned well over £1.5 million from … Keep Reading…

Learning to cope with your child’s Pathological Demand Avoidance

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I’ve noticed there is a lot of information on social media about Pathological Demand Avoidance, now recognised as part of the Autism Spectrum (by The National Autistic Society). It’s a condition I’ve suspected for a long time now that my … Keep Reading…

Share your experiences of the reforms for Nicky Morgan’s SEND review

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In just over a week’s time, I’m taking a group of parents to the Department for Education to meet former MP, Lee Scott, who has been asked by the Education Secretary, Nicky Morgan, to carry out a review into the SEND … Keep Reading…

The rare disease game-changers showing how SEND co-production can work

ECRD collage

Last week I attended the European Conference on Rare Disease being held in Edinburgh*. It was three days of listening to presentations about developments in rare disease research and medicines and meeting new people and those I’d only previously met online. … Keep Reading…

The real message the EHCP stats should give to the Ministers

The real message the EHCP stats should give to the Ministers

Yesterday’s new SEND statistics reported worrying progress on SEND reform up to January 2016, amid soothing words from the Ministers in charge that the reforms are “boosting the life chances of children with SEND”. The facts speak for themselves: according … Keep Reading…

Edward Timpson and Jane Ellison: “Our reforms are boosting the life chances of children with SEND”

Edward Timpson and Jane Ellison Quote

As parent carers we often measure our successes in the little victories we achieve on a day to day basis. They may not seem significant to some, but to us they are milestones that serve to remind us that as … Keep Reading…

What makes a good outcome in an Education, Health and Care Plan?

What makes a good outcome on an Education, Health and Care Plan?

One of the changes within the SEND reforms is that the support in the statutory Education, Health, and Care Plan must contain outcomes instead of objectives. So what is an outcome? The SEND code of practice states: 9.61   EHC … Keep Reading…

How do Apprenticeships support young people with SEN?

How do Apprenticeships support young people with SEN?

Only 6% of people with learning difficulties are currently in employment. No, I didn’t make that shocking figure up, it was mentioned in the announcement of a new government ‘Taskforce’ to help more people with learning disabilities to access an apprenticeship. These … Keep Reading…