#RareDisease Day: Impossible situations create remarkable people

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Today is Rare Disease Day and during the past week we have been featuring a number of families who have been affected by rare conditions. Even if you’re not especially interested in the field as a whole, you cannot fail … Keep Reading…

#RareDisease Day: Our daughter’s devastating diagnosis changed every aspect of our lives

Patricia Amelie

Today’s article featuring a family affected by a rare disease brought a strange coincidence. On Wednesday, when I was at the Rare Disease UK reception to mark the yearly Rare Disease Day, the reason for this series of articles, I found … Keep Reading…

#RareDisease Day: Our quest for answers for our daughter’s mystery illness

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When you have a baby, you expect that raising them will bring some ups and downs.  But for Laura Joliffe and her husband Graham, life with their daughter Ava has been a rollercoaster since she inexplicably began to regress in … Keep Reading…

#RareDisease Day infographic and talking parent/patient advocacy

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As I’m a fun kind of gal, yesterday I watched the livestream of the #rareEU2015 meeting in Brussels held by EURORDIS, Europe’s rare diseases patient advocacy alliance. Well, listened to the stream in the car for some of it, as … Keep Reading…

Children’s Mental Health Week: Our experience of CAMHS nearly broke us

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The children’s charity, Place2Be have launched the first Children’s Mental Health Week this week. The Duchess of Cambridge yesterday spoke of her and her and Prince William’s belief that early intervention is imperative if we are to prevent mental health … Keep Reading…

Sensory Occupational Therapy for Sensory Processing Disorder

Emily Alexander has a magical secret… she works for Santa at The International Elf Service. She is also a Registered Osteopath and a Mum to a wonderful little boy who has Down’s syndrome and sensory processing disorder. Here she charts the … Keep Reading…

The SEN Minister responds to your feedback of the special needs reforms so far

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I received a letter from Ed Timpson, the Minister for Education with responsibility for SEND reform yesterday. It follows the trip Renata and I made to The Department for Education in January to conduct a video interview with him. If … Keep Reading…

Professional pleasantries: Why Jenny thinks complaining can sometimes be counter-productive

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One of the great things about having Special Needs Jungle for me, is getting to meet other women who also happen to have children with special needs. One such laydee is Jenny Smith, a woman of dry wit, a penchant … Keep Reading…

A game-changer? Will ruling of illegal Local Offer force councils to do better?

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On Thursday afternoon, we brought you an update from a High Court Judicial Review hearing which found that Warwickshire’s SEN & Disability Local Offer plans were so rubbish that they actually broke the law. By the date the new SEND reforms … Keep Reading…

Rapid & radical training for all teachers in SEN is key to improving outcomes

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We’re really pleased that SNJ is attracting many more teaching professionals and other SEND practitioners to our readership. In the end, we all have the same goal – ensuring that children with special needs and disabilities – our children – … Keep Reading…