4000 and counting: Did you have a satisfactory EHC plan issued last year?

EHCP transfer

Last week, the Department for Education released its Statistical First Release – Statements and EHC Plans. This statistical first release (SFR) publishes data from the annual SEN2 data return, which is mandatory for local authorities to complete. The return is … Keep Reading…

Parents must advocate for each other to make the new SEND system work

KEEP CALM ADVOCATE

I was invited to speak at a conference last weekend called #RoadMapforLife at Swiss Cottage school, a special school in north London. Writing the presentation, I was reminded that even though we’re all busy with our lives and especially our … Keep Reading…

Teaching children complex communication

communication

“The single biggest problem in communication is the illusion that it has taken place”. – George Bernard Shaw Communication is a hugely complex thing.  The more I think about how complicated it is, the more it amazes me that more … Keep Reading…

NSPCC video released to help protect deaf children from sexual abuse

Earlier this year the NSPCC launched guidance called the “Underwear Rule” to help protect children from sexual abuse. To coincide with Deaf Awareness Week, the charity is launching a video version of its successful guidance to enable deaf children to benefit from the … Keep Reading…

Revolutionary New Resource for Parents: Talking About Down’s Syndrome

Talking About Down's Syndrome: Conversations for New Parents

I am enormously proud to announce the launch of a very exciting project I have been working on for some months now. Talking About Down’s Syndrome: Conversations for New Parents is a pack of bright colourful, portable cards. The cards are … Keep Reading…

Patient Advocate Power! Renata helps create first specialist nurse for Undiagnosed kids

renata-dom

Today is Undiagnosed Children’s Day and a perfect day to tell you about an achievement for our SNJ team member and JustBringTheChocolate Blogger, Renata Blower. To mark the day last year, Renata made this fantastic video with her three children, Elliot, … Keep Reading…

Our son’s undiagnosed condition brings new challenges almost every day

At the end of this week it’s Undiagnosed Children’s Day. These are conditions so ultra-rare they don’t have a name – and that brings many more challenges for families already dealing with a sick child. We have some special news … Keep Reading…

Little or no choice for young disabled people for further education

disabled students

A while ago, you may remember we featured a post from Kathryn Rudd OBE, Principal National Star College and Chair of the Association of National Specialist Colleges (Natspec) They were running a survey to determine if young people with SEND … Keep Reading…

What does Participation look like? A Circle or a Ladder?

Circle of Involvement

As I sat scrolling through Twitter a few weeks ago, I came across a conversation that set me thinking. Kath Evans (Head of Patient Experience at NHS England) was asking if people preferred an image showing “the ladder of participation” … Keep Reading…

#12MillionVotes: A Manifesto for Disabled People

12 million votes

It’s two years now since I was diagnosed with Ehlers Danlos syndrome and Postural Orthostatic Tachycardia and officially became one of the millions of people, young and old, who live with a disability. It’s given me an interesting perspective to … Keep Reading…

On conversation, sensory issues and being different: Some SNJ book reviews!

I can't wear those clothes

I am sometimes sent books for possible review but find it difficult to fit it all in. Luckily, I know some parents who are very good at reading and reviewing books, so I pass suitable ones on and they may review … Keep Reading…

The role of the SENCO: what do you need to know?

senco

The SENCO has a critical role to play in ensuring that children with special educational needs and disabilities within a school receive the support they need. Gradually over the years the status and import of the role has developed with … Keep Reading…

Special Needs parents outraged at use of Sam Cam’s bereavement as election tool

Sam Cam comments

The article on Samantha Cameron that appeared in The Daily Telegraph on Monday has caused a storm of outrage among Special Needs Jungle readers on our Facebook page. In an article entitled, “Samantha Cameron: pain of son Ivan’s death will never … Keep Reading…