The most popular post on Special Needs Jungle continues to be about the condition Pathological Demand Avoidance
Last week I met Deborah Rourke, who wrote the post - it turns out she lives close to me so I hope we will see a lot more of each other.
There is to be a PDA Awareness Day on May 15th, and Deborah writes here about the group's plans.
Pathological Demand Avoidance syndrome is increasingly being recognised as part of the autistic spectrum. One group instrumental in bringing about this change is the PDA Contact Group, a supportive website filled with contacts and information.
It has a forum where parents, carers and siblings can ask questions or simply vent their concerns. Our membership numbers over 2000 now and the forum is busier than ever with the number of enquiries for support and information is increasing.
It is fast becoming clear that the group must consider the future and start thinking ahead. Awareness and recognition of PDA is greater than ever before and it is perhaps time for the group to develop its role in response to this change in status.
PDA may not have made it into everyone’s vocabulary, but it is on the agenda for being taken seriously by a wider range of professionals.
Our immediate aims are for the PDA contact group to become a registered charity and we are currently campaigning for 15th May every year to become PDA Awareness Day.
The National Autistic Society has put on several informative PDA conferences across the country and we feel workshops and seminars as well as participating at wonderful events such as The Autism Show,at Excel London 14/15 June is the way forward.
With help from government grants and kind donations, our future aims are to ensure accessible information is available in every GP surgery, play-centres, nurseries, schools, to further help raise PDA awareness and provide vital information across the board.
We are very excited and overwhelmed by all the generous offers of help, support, donations; it will provide us with the much needed resources to begin to provide some of the above services.
Please do not hesitate to explore our website: www.pdacontact.org.uk (a new one is on its way, to better manage the increase in demand).
You can now also find us on twitter: http://twitter.com/pdacontactgroup
Other recommended PDA information sites: http://advocate4pda.wordpress.com
Supportive Facebook group: http://www.facebook.com/groups/7165353156/
National Autistic Society: http://www.autism.org.uk/about-autism/related-conditions/pda-pathological-demand-avoidance-syndrome.aspx
Latest posts by Tania Tirraoro (see all)
- The Great EHCP Swindle - May 4, 2016
- SNJ’s new service: EHCP Transfer Clinic! - April 25, 2016
- It’s back! ASK IPSEA on SNJ is relaunched- let the questioning commence! - April 18, 2016