Birmingham Children’s Hospital leads the way with the UK’s first holistic paediatric Rare Disease Centre

…Week 22nd February to 29th February 2015 at Birmingham Children’s Hospital As we develop the First Paediatric Holistic Rare Disease Centre in the UK, Birmingham Children’s Hospital are holding a…

Birmingham Children’s Hospital puts the fun in fundraising in its fabulous Rare Disease Day event!

I had a brilliant time in Birmingham yesterday at the Children’s Hospital where they held a vibrant and fun-filled Rare Disease Day event. Roald Dahl’s Marvellous Children’s Charity was out…

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…Rare Diseases in Birmingham A shout-out for a an event for rare disease patient groups and for professionals interested in the field. Findacure Midlands Networking… Continue reading » Our magical…

The advocate leading a summit to make patient and medical collaboration less ‘rare’

…better care and multi-disciplinary clinics in partnership with Torbay Hospital and Birmingham Children’s Hospital. They’ve become trail-blazing models for other rare diseases. Sadly, the development of this work could not…