Birmingham Children’s Hospital leads the way with the UK’s first holistic paediatric Rare Disease Centre

…Week 22nd February to 29th February 2015 at Birmingham Children’s Hospital As we develop the First Paediatric Holistic Rare Disease Centre in the UK, Birmingham Children’s Hospital are holding a…

Birmingham Children’s Hospital puts the fun in fundraising in its fabulous Rare Disease Day event!

I had a brilliant time in Birmingham yesterday at the Children’s Hospital where they held a vibrant and fun-filled Rare Disease Day event. Roald Dahl’s Marvellous Children’s Charity was out…

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…us know what it’s like to be questioned intrusively by complete strangers because of our child’s disability – whether… Continue reading » Showcasing Rare Diseases in Birmingham A shout-out for a…

The advocate leading a summit to make patient and medical collaboration less ‘rare’

…better care and multi-disciplinary clinics in partnership with Torbay Hospital and Birmingham Children’s Hospital. They’ve become trail-blazing models for other rare diseases. Sadly, the development of this work could not…

The £70 million council costs of fighting – and losing – against parents at the SEND Tribunal

…Enfield 5 0.8% These tables rank LAs not by how many appeals they’ve had overall (on that score, Surrey, Birmingham and Kent are this year’s chumpions), but by appeal rates:…