Birmingham Children’s Hospital leads the way with the UK’s first holistic paediatric Rare Disease Centre

…was very important to us at BCH to develop a rare disease strategy to address the keys improvement areas highlighted by Rare Disease UK. Therefore, Birmingham Children’s Hospital are developing…

Rare Disease Day 2014: the largest awareness campaign ever, what’s next?

diseases promoting rare diseases as an international public health priority. Part of the action plan for Rare Diseases International includes the promotion of rare disease awareness worldwide through active participation…

Rare Disease Day: How Dan’s rare disease didn’t stop his mainstream education

Rare Disease Day is at the end of February, with the theme ‘Disorders without Borders’. In Europe it’s coordinated by EURORDIS, the European Rare Diseases Organisation. Many children have special…