Fighting for my disabled child’s right to summer fun
Tania’s note: Today we’re welcoming a new columnist to SNJ, Catriona Moore. Catriona is the parent of a child with complex needs from the rare disease, Rett Syndrome. She works …
Author: Catriona Moore
Catriona Moore has a background in policy and communications and has worked for a number of health and social care organisations. She has also served as an elected councillor in a London borough and a school governor, and was for a short period a trustee of Reverse Rett.
When her younger daughter was diagnosed with Rett Syndrome in 2009 shortly before her second birthday, Catriona found herself dealing in practice with things she’d previously thought she understood in principle.
She juggles her work as policy officer for a national disability charity with caring and advocating for her daughter. She is passionate about improving the lives of disabled children and their families, and making the systems that should support them work more transparently and equitably.
