Empty spaces and unwanted freedom: When caring comes to an end
SNJ note: Catriona wrote in March about the devastating passing of her beloved daughter, Amy, who had Rett syndrome, at age 17. Today she has written about the aftermath of …
Category: Amy Reyes
Remembering AMY, Catriona and Ed’s “fierce and funny and fabulous” daughter
Today, our post is dedicated to Amy Reyes, the daughter of our columnist Catriona Moore, and her husband Eduardo Reyes. Amy is also the sister of Abby Reyes. Devastatingly, Amy …
Partnering with clinicians to reverse Rett, my daughter’s rare disease
“Did you say ‘Retz Syndrome’? How do you spell it?” These were the questions I asked the neurologist who speculated in passing that this might be the explanation for why …