Top tips for navigating an EHCP process – for both parents and SEN departments!

Tania writes: Ask anyone who’s been through England’s new special educational needs statutory assessment as part of the EHCP process, and you’re more likely than not to hear a sorry …

The Rare Reality: An insight into the patient and family experience of living with a rare disease

Specialised help and services for children and adults with rare or undiagnosed conditions has always been hard to find – or non-existent – and often, parent carers and patients themselves …

Why high-tech medical innovations just don’t match the harsh reality of health & disability funding

As soon as they became our neighbours, our mother sent us round to play with the kids next door. Vivacious twin girls, of no interest to me, and the boy. …

Our new Rare Disease columnist asks you to help get MPs interested in genetic conditions

Tania’s note: We’re delighted to introduce Genetic Alliance UK as our new columnist for rare disease, genetic and undiagnosed conditions.  Genetic Alliance UK is the national charity working to improve …

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