In my first post on top tips for parenting a child with challenging behaviours, I suggested that you: Seek support and be compassionate with yourself and that you work as …
One of the things I get asked regularly, in my capacity of mother of an older child with Down’s syndrome, is how to write the parental statement part of the …
We all know that money’s tight in public services, not least in providing for children with disabilities. It’s not surprising local authorities want to avoid shelling out lots of money …
Recently I posted a Christmas Shopping List on Facebook that has done its best to go viral. As someone who shares a lot on social media I am often surprised …
Four years ago, we were on our metaphorical knees. The previous 18 months of getting a diagnosis, attending endless medical appointments, fighting for essential equipment and services and trying somehow …
Is your child getting an EHCP? Have you talked to your school about SEND support recently? Has your LA tried to interest you in one of its awkwardly-named “My Plans”? …
One in ten of us are affected by dyslexia. While many schools have got much better at spotting a potentially dyslexic student, there are still some in education who, believe …
For all parents of children/young persons who currently have a Statement of Special Educational Needs, your local authority is required to have transferred their Statement to an Education, Health, and …
Tania’s note: Please welcome another new writer on SNJ, SEND lawyer, Hayley Mason. Hayley will be writing posts that inform parents about legal issues, but note, her posts do not constitute …
It’s the last week of the year in most English schools. A week to take things a bit easier, tidy away, and prepare for what the next academic year brings. But …
It seems that at every milestone and crossroads in your child’s life, your pride, relief and excitement at their achievements is met with an equal measure of stress and worry. …
Recently Lucy has started to experience-share more with us at Bright Futures School. She has come a long, long way from the disengaged girl who started with us back in …
I’ve got two deaf boys. They’re brighter than I am. They’re more determined than I am. They work harder in the course of a single day than I do in …
In Tuesday’s post on the outcomes for children and young people with SEND but no EHCP I concluded by drawing attention to the importance of the SEND Co-ordinator in taking …
Last week I wrote about the problems facing parents of children in mainstream school whose special needs have been persistently overlooked. While the troubled roll-out of Education, Health & Care …
On the morning of the General Election, Thursday 8th June, I supported a parent in a meeting with her school’s Headteacher. We were discussing her complaint that the school had …
Happy Undiagnosed Children’s Day! Did you know that around 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare …
Having a child with rare disease can mean that you are given very little information about their condition. Parent carers find themselves becoming the expert, rather than the professionals who are …
In a previous post in my series on co-regulation in autism, we looked here at what it is and how important it is to establish co-regulatory roles when working with …
Rosie Collington of Rare Disease UK writes… The UK has a reputation internationally as a leader in rare disease research. Over the past few months at Rare Disease UK, we’ve …
