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Category: Columnists
Home Archive for category "Columnists" (Page 5)
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Category: Columnists

Act now to protect the NHS funding of rare disease medicines like Ava’s
Columnists, Health, Rare Disease, special needs

Act now to protect the NHS funding of rare disease medicines like Ava’s

By Beth McCleverty, Genetic Alliance UK April 3, 2017 April 3, 2017

Having a child with rare disease can mean that you are given very little information about their condition. Parent carers find themselves becoming the expert, rather than the professionals who are …

Read more"Act now to protect the NHS funding of rare disease medicines like Ava’s"
Co-regulation in Autism: synchronising emotions, intentions and thoughts
Autism, Columnists, special needs

Co-regulation in Autism: synchronising emotions, intentions and thoughts

By Zoe Thompson March 17, 2017 March 17, 2017

In a previous post in my series on co-regulation in autism, we looked here at what it is and how important it is to establish co-regulatory roles when working with …

Read more"Co-regulation in Autism: synchronising emotions, intentions and thoughts"
Rare disease research is vital to patients. Now let’s use it to improve services.
Columnists, Rare Disease, Research, special needs

Rare disease research is vital to patients. Now let’s use it to improve services.

By Rosie Collington, Genetic Alliance UK February 28, 2017 February 27, 2017

Rosie Collington of Rare Disease UK writes… The UK has a reputation internationally as a leader in rare disease research. Over the past few months at Rare Disease UK, we’ve …

Read more"Rare disease research is vital to patients. Now let’s use it to improve services."
Our children, “managed” out of mainstream schools and denied support
Columnists, Looked after children

Our children, “managed” out of mainstream schools and denied support

By Barney Angliss, @AspieDeLaZouch February 1, 2017 January 31, 2017

In just 11 astonishing days, the denial of young people’s rights to education, health and care in England has been completely exposed. Evidence of young people being hidden away from …

Read more"Our children, “managed” out of mainstream schools and denied support"
Putting Social, Emotional and Mental Health at the top of our schools’ agenda
Academies, Columnists, Mental Health, special needs

Putting Social, Emotional and Mental Health at the top of our schools’ agenda

By Malcolm Reeve January 20, 2017 July 4, 2017

At Academies Enterprise Trust (AET), where I’m Executive Director for SEND and Inclusion, we’ve been thinking about Social, Emotional and Mental Health Needs (SEMH) in our schools for some time. …

Read more"Putting Social, Emotional and Mental Health at the top of our schools’ agenda"
Ofsted Local Area SEND Inspectors: The good, the bad & the ugly
Columnists, SEND Accountability, special needs

Ofsted Local Area SEND Inspectors: The good, the bad & the ugly

By Matt Keer January 10, 2017 January 13, 2017

If you’re reading this, then you’ll know that the Government reformed the English SEND system in 2014. Inspectors from Ofsted and the Care Quality Commission (CQC) are checking how well …

Read more"Ofsted Local Area SEND Inspectors: The good, the bad & the ugly"
Ofsted/CQC SEND Inspections and Parents: More Than A Feeling?
Columnists, SEND Accountability

Ofsted/CQC SEND Inspections and Parents: More Than A Feeling?

By Matt Keer December 19, 2016 December 18, 2016

Six months ago, Ofsted & the Care Quality Commission began inspecting how well local areas are implementing the September 2014 SEND reforms. At the time of writing, they’ve published 13 …

Read more"Ofsted/CQC SEND Inspections and Parents: More Than A Feeling?"
Tips for talking to children with language difficulties about their school day
Columnists, special needs, speech & language

Tips for talking to children with language difficulties about their school day

By Elizabeth Gunner SpeechBlogUK December 16, 2016 December 15, 2016

I always like to try and talk to my son about what he has done at school that day. His normal response is “things and stuff”, unless something very specific …

Read more"Tips for talking to children with language difficulties about their school day"
Supporting a child with Addison’s Disease at school
Columnists, Rare Disease, special needs

Supporting a child with Addison’s Disease at school

By Marguerite Haye December 2, 2016 November 30, 2016

In October 2016, I attended the Cambridge Rare Disease Network Summit 2016 with Tania. It was very thought-provoking and listening to families’ stories, about gaining a diagnosis for their child …

Read more"Supporting a child with Addison’s Disease at school"
Removing the barriers to bedtime for children with disabilities
Columnists, Disability, parenting, special needs

Removing the barriers to bedtime for children with disabilities

By Nancy Gedge November 25, 2016 November 24, 2016

I have to admit that for a while, R and I joined the ranks of Smug Parents.  We didn’t mean to.  Most of the time we are running around in …

Read more"Removing the barriers to bedtime for children with disabilities"
What autistic schoolgirl Lucy, did next: An explosion in development
Autism, Columnists

What autistic schoolgirl Lucy, did next: An explosion in development

By Zoe Thompson November 18, 2016 November 18, 2016

In my last blogpost, I shared my intention to show footage of other pupils from Bright Futures School.  In light of more excellent progress from Lucy, on whom my other …

Read more"What autistic schoolgirl Lucy, did next: An explosion in development"
Tips to help a bullied child: Anti-Bullying Week
anti-bullying, Columnists, special needs

Tips to help a bullied child: Anti-Bullying Week

By Angela Kelly November 14, 2016 November 13, 2016

The Anti Bullying Alliances’ theme this year for anti-bullying week is ‘Power for Good’.  What I understand this to mean is that we ALL have the power to help make …

Read more"Tips to help a bullied child: Anti-Bullying Week"
Draft Plans and Working Documents in an EHCP
Columnists, Education Health and Care Plan, special needs, TopTips

Draft Plans and Working Documents in an EHCP

By Bren Prendergast November 11, 2016 November 9, 2016

Working Documents (WD) and draft EHC plans are quite similar, although with a draft plan you can negotiate on all of it whereas a WD only (currently) relates to sections …

Read more"Draft Plans and Working Documents in an EHCP"
The high costs of living with a disability, especially if it’s rare
Columnists, Disability, Rare Disease, special needs

The high costs of living with a disability, especially if it’s rare

By Beth McCleverty, Genetic Alliance UK November 4, 2016 November 4, 2016

I don’t need to tell regular readers of this blog that dealing with the symptoms of the condition that affects you or your child is often only half the battle. …

Read more"The high costs of living with a disability, especially if it’s rare"
A World Without Down’s Syndrome? Where do we  go from here?
Columnists, Downs Syndrome, special needs

A World Without Down’s Syndrome? Where do we go from here?

By Hayley Goleniowska October 28, 2016 October 28, 2016

Just over two weeks ago I witnessed an online surge, the likes of which I have rarely seen before. Started by one passionate mum, actor Sally Phillips, her ‘celebrity’ tag …

Read more"A World Without Down’s Syndrome? Where do we go from here?"
Not co-production: Was your child’s Education, Health and Care plan outsourced?
Columnists, Education Health and Care Plan, special needs

Not co-production: Was your child’s Education, Health and Care plan outsourced?

By Matt Keer October 10, 2016 October 10, 2016

Tania’s note: Matt Keer, the parent of children who are deaf, is a whizz at figures. He’s written for us before and helped SNJ numerous times. Happily, he’s joining now our team …

Read more"Not co-production: Was your child’s Education, Health and Care plan outsourced?"
Top tips for keeping your cool when parenting styles conflict
Columnists, Mental Health, parenting, special needs, TopTips

Top tips for keeping your cool when parenting styles conflict

By Angela Kelly September 30, 2016 October 29, 2016

One of the things that can cause big conflicts in a relationship, particularly where there is a child with special needs, is differing styles of parenting. We’ve had our own issues …

Read more"Top tips for keeping your cool when parenting styles conflict"
Review: Building Language Using Lego Bricks
Columnists, speech & language

Review: Building Language Using Lego Bricks

By Helen Coleman SpeechBlogUK September 23, 2016 March 17, 2017

Elizabeth and I were recently contacted by Jessica Kingsley publishers, asking us to review a new book.  When I saw that the subject of the book was Lego and language …

Read more"Review: Building Language Using Lego Bricks"
Join the discussions that are connecting the rarest of rare diseases
Columnists, Rare Disease, special needs

Join the discussions that are connecting the rarest of rare diseases

By Robert Pleticha: RareConnect September 16, 2016 September 16, 2016

I’ve written on SNJ before about how the online community I help to manage, RareConnect, works to bring together families facing the challenge of living with rare disease. We now have …

Read more"Join the discussions that are connecting the rarest of rare diseases"
Who’s using your family’s health data and how secure is it?
Columnists, Health, Rare Disease, special needs

Who’s using your family’s health data and how secure is it?

By Beth McCleverty, Genetic Alliance UK July 29, 2016 July 31, 2016

Beth McCleverty is the columnist today from Genetic Alliance UK Data, from many angles, has been somewhere near the top of the agenda for a while now. Whether the issue …

Read more"Who’s using your family’s health data and how secure is it?"

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