I’ve written on SNJ before about how the online community I help to manage, RareConnect, works to bring together families facing the challenge of living with rare disease. We now have …
Beth McCleverty is the columnist today from Genetic Alliance UK Data, from many angles, has been somewhere near the top of the agenda for a while now. Whether the issue …
Last summer I sat down at my kitchen table and I wrote a book. Well, it wasn’t quite like that, if the truth be told; I started it in the …
When development is typical, infants at around six-seven months begin to show signs of an insatiable drive to grow…to stretch, learn and explore. Parents, in turn, are instinctively ready to promote this …
If you are concerned about any aspect of your child’s development, it can be difficult to know where to turn for advice. How can you know whether you are right …
Our son has a severe physical disability and a longstanding diagnosis. He had a statutory Statement of Special Educational Needs issued by our local authority almost 18 months ago, in …
For four weeks from late April to early May I conducted a research survey into how things were going with the SEND reforms – specifically, how EHCPs were going. The …
As parent carers we often measure our successes in the little victories we achieve on a day to day basis. They may not seem significant to some, but to us …
One of the changes within the SEND reforms is that the support in the statutory Education, Health, and Care Plan must contain outcomes instead of objectives. So what is an …
Today is PDA (Pathological Demand Avoidance) Day and I wanted to do a quick post to promote awareness and provide reassurance to all those families who are supporting children and …
Our most popular posts on Speech Blog UK tend to be the ones about speech sounds. It is an area that schools and parents feel unqualified to tackle alone – …
Tania’s note: A parent post today, but it’s not a personal tale of an experience with the new Education, Health and Care Process. Instead, it’s a lesson for everyone involved in the SEND …
I have three children. All three have an undiagnosed genetic condition. One is a wheelchair user, has feeding tubes, and complex medical needs, one is a bit wobbly on his …
Today is Undiagnosed Children’s Day, a nationwide event aimed at increasing awareness of SWAN or Syndromes Without A Name (also known as an undiagnosed genetic condition). Around 6,000 disabled children are born every …
Today I am delighted to introduce Sarah Down who has agreed to write a guest post for us. Sarah is mother to a lively four and a half year old …
A couple of months ago I was invited to speak at the Academies Show in London on the subject of assessment for children with SEND. It was very exciting (and …
By 1 April 2018, local authorities must have transferred all children and young people with statements of SEN to the new SEN and disability system who meet the criteria for …
In my December blog I shared that I would follow up on the government’s SEND figures for schools. These are released annually in early summer and are based upon returns from …
If you have any Lavazza in the kitchen, start percolating. Chocolate chip cookies? Yep, you’ll need them too: this needs your best attention. I can’t promise to make this post …
Today, we’re helping campaigner, Downs Side Up blogger & our SNJ columnist, Hayley Goleniowska, support Down’s syndrome Awareness week. She’s running a “Thunderclap” campaign which aims to get supporters to …
