The current public health crisis will leave no aspects of our lives untouched. One of the most obvious consequences is the care and support which disabled children and young people …
*Click here to go straight to latest information for education, health and social care. The Coronavirus COVID-19 pandemic is whipping up a storm of uncertainty and needless panic-buying across the …
SNJ note: It’s #RareDiseaseDay around the world. Today, CEO of Genetic Alliance UK, Jayne Spink, talks about a new “red alert” system that can help thousands of people. But it …
With Royal College of Speech and Language Therapists chief executive, Kamini Gadhok MBE, and Caroline Wright, policy adviser for children and young people in England Ask any parent about the …
It’s Undiagnosed Children’s Day. It is hard to believe that it was seven years ago that Lauren (now of SWAN UK) and I began Undiagnosed Children’s Day (It used to …
As many parents who read our articles can tell you, when a child has a serious illness, their normal family life is hugely disrupted. Medical appointments, caring responsibilities and fitting …
Speech, language and communication is fundamental to children’s development. Children with underdeveloped SLCN skills (which is more common that you might think) can neither learn or achieve as well as …
It’s Rare Disease Day, something we traditionally mark, with both Renata’s and my own family being affected by rare conditions and all that it brings. This year I want to …
Imagine a world you can neither see nor hear, yet you must find a way to grow and thrive within it, feeling your way, using the senses you do have …
In a post titled Send Children Being Traumatised By Not Getting Help Needed in School, Tania recently touched on the subject of SEN children becoming traumatised by the education system. She wrote about …
The thing that worries me most about my disabled daughter as she gets older is who will understand her. Who will really get to know who she is, and what …
6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that is likely to remain undiagnosed. Having an undiagnosed …
Recently, a review was published by the children’s communications charity, I CAN and Royal College of Speech and Language Therapists to see what improvements had been made a decade after the …
“Did you say ‘Retz Syndrome’? How do you spell it?” These were the questions I asked the neurologist who speculated in passing that this might be the explanation for why …
It’s Rare Disease Day this week and evey year we like to highlight the day, on 28th February, by telling you some stories of children and their families who are …
The speech therapy process is very much a collaborative one. Even if your child is lucky enough to get regular speech therapy sessions, that’s still only half-an-hour or an hour …
In my first post on top tips for parenting a child with challenging behaviours, I suggested that you: Seek support and be compassionate with yourself and that you work as …
Dominic is 11 and now in his final year at a mainstream primary school. He is very happy there and despite very complex medical issues and relying on a powered …
As some of you may know, I have been doing my bit to help improve local SEND where I live in Surrey – right now I’m running their new Local …
A new report published by Young Epilepsy says one in three schools in England are effectively breaking the law by not having Individual Healthcare Plans (IHP) in place for children with …
