In the last year I've been lucky enough to have had many parents write about their families and the issues they face raising children with special needs. These woman have a lot to share from their experiences that can help others in a similar position and so, as the year nears an end, I'd like to showcase them here in case you missed them when they first appeared during 2012.
Charlotte’s amazing brain – a heartfelt story about childhood stroke
Charlotte Neve was just seven when disaster struck. Her mother, Leila, has had to face the ultimate horror for any parent and even now, Charlotte has a significant brain injury as a result of her stroke that they are facing with the same determination as they did in their early, dark days when even survival wasn’t assured.
Advice for SENCos – the parents’ perspective from Hayley Goleniowski
Hayley was recently invited to address a group of SENCos as the neared the end of their three year Masters’ degree course. Their tutor hoped Hayley’s experience could provide the missing ingredient to the course – that of the parents’ perspective.
When the words move by themselves – it could be Visual Stress
I met a lady on Twitter a while back, Michelle Doyle, who was talking about ‘Visual Stress’. I wasn’t really clear about what this was so Michelle has kindly written about it for Special Needs Jungle about how it affects her son and her fight to get him the support he needs.
Pathological Demand Avoidance – one family’s story
Pathological Demand Syndrome is increasingly being recognised as being on the autistic spectrum. People with PDA will avoid demands made by others, due to their high anxiety levels when they feel that they are not in control. One mum, Deborah Rourke, has written for Special Needs Jungle about her son, who has been diagnosed with PDA and their fight for support. It’s a heart-breaking story. Please share it as widely as you can to raise awareness of PDA.
Helping your special needs child – a mother’s story
A mum called Tanya contacted me the other day and asked to share her story about her journey to support her disabled son with everyone, which I am only too delighted to do. Tanya has some extremely useful suggestions so I urge you to read it. Please leave your comments in the comments section so she can see them.
Empowering parents is the goal for Pat
Pat Bolton is a parent of a young person with special needs who works with a small team of Participation Practitioners at Parents In Power, Gateshead, www.parentsinpower.btck.co.uk Pat helps parents to get the support their children need.
Resilient Parenting – A Guest post by Lesley McCall, NLP & Hypnotherapy Practitioner
Lesley McCall is an NLP practitioner and Hypnotherapist and has a child with SEN. She is experienced in helping people with parenting issues and with children who have special needs. She has some advice on how you can stay strong as you raise your children.
Tania is an experienced broadcast and print journalist & author. She also runs a PR, web & social media consultancy, SocialOro Media.
Tania is a rare disease & chronic pain patient advocate with Ehlers Danlos syndrome.
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- Exclusion must be a last resort says EHRC as they support a family to justice over their disabled child’s treatment - August 2, 2023
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