About Robert

Based in Barcelona, RareConnect is the online community forum for rare disease patients run by EURORDIS, the European Rare Diseases Organisation. As the Senior Online Communities Manager, Robert Pleticha, helped …

About Renata

I’m Renata Blower, co-director of Special Needs Jungle. I describe myself as a realistic optimist, which is helpful when you have three children all with their own mix of needs. …

Protecting education for children with medical conditions and life-saving heart equipment for schools

Much of the unhappiness with the draft Children & Families Bill, now Act, stemmed from its exclusion of children with disabilities or medical conditions who did not have a specific …

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