I was checking the most frequently used search terms that brought people to my site the other day and one of the top ones was "Pathological Demand Avoidance"
I ran an article a while ago by Deborah Rourke about PDA and it still continues to be very well visited, so I know that this is an important issue for many parents who are seeking information about the condition, which is very under-recognised.
I would now like to introduce you to a mum who would like your help as she researched Pathological Demand Avoidance for her dissertation. Hannah Reynolds has a very personal reason for choosing the subject.
** Please see update at bottom**
***
Hi, my name is Hannah Reynolds and I am stuying for a MSc in Forensic Psychology at the University of Portsmouth. I am also mum to two daughters, one of whom I suspect may have Pathological Demand Avoidance Syndrome. I'm fascinated by this condition and, particularly, why some children with PDA behave very differently depending on the environment they are in - between home and school, for example (like my daughter!).
For my dissertation, I will be conducting research into this particular feature of PDA and am currently looking for people who would like to participate in my study once it is up and running (next year).
So, if your child - with OR without an official PDA diagnosis - shows this difference in behaviour between environments, please send an email to hannah.reynolds@myport.ac.uk and I will add you to a database of participants.
I want to make this as informative a piece of research as possible so please, if this description fits you (or anyone else you know), get in touch!
Many thanks
Hannah 🙂
** Update from Hannah January 2012***
It has been necessary for me to tweak my project proposal (this is common in the early planning stages) and, though I will still be researching PDA, I will be conducting a more in-depth, qualitative study into parents' and teachers' experiences of a child with this syndrome. In a couple of months, I will post an update on this website (thank you very much, Tania!) to advertise for participants so please check back for this.
I am very grateful to those parents who have already emailed me and I would like to hold on to all details for any future research I might carry out in this field. Please let me know if you would like your name removed. To any parents who would like to be considered for further research on PDA, please email me - hannah.reynolds@myport.ac.uk - and I will add your name to my database.
Many thanks for your time and don't forget to keep checking for updates!
Founder, Co-Director at Special Needs Jungle
Founder of Special Needs Jungle. (She/Her) Parent of two young adults with autism. New grandma. Tania, who is autistic, is a leading SEND advisor, working with the Special Education Consortium, Ofsted, and Whole School SEND. She is also an Advisory Board member of the Royal Holloway, University of London Centre of Gene and Cell Therapy and an Editorial Board member of Springer Nature Gene Therapy journal.
Tania is an experienced broadcast and print journalist & author. She also runs a PR, web & social media consultancy, SocialOro Media.
Tania is a rare disease & chronic pain patient advocate with Ehlers Danlos syndrome.
Tania is an experienced broadcast and print journalist & author. She also runs a PR, web & social media consultancy, SocialOro Media.
Tania is a rare disease & chronic pain patient advocate with Ehlers Danlos syndrome.
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Hello
A PDA conference is being held in Edinburgh next week (15th) – details from NAS site. Hope these linkls are helpful but you may already have them
http://www.autism.org.uk/global/content/search%20results.aspx?q=PDA
http://ccgi.pdacontact.org.uk/forum/index.php
Thanks. I ran a piece about that a while ago but a reminder doesn’t hurt at all!