SEND Blogger showcase 2: Mum On A Mission & Our Altered Life

Today we have the second in our August SEND blogger showcase and we’re so delighted to be able to share some of these brill bloggers with you.

This week we’re featuring two lovely ladies, Laura of Mum on a Mission and Charlie at Our Altered Life. Both are very proactive women as you will see from their spotlights below. This is the thing I see time and again with SEND parents; they don’t just think about themselves and their difficulties, they try to help others in similar situations too. It’s one of the reasons I’m proud to be part of this community (albeit an aged member these days, haha!) . I’m hoping every blogger who’s sent me a spotlight will also write a guest post in the next few months too.

So without further ado, we start with Laura’s mission, followed by Charlie’s roller-coaster…

Laura: Mum on a Mission

I am Laura; the mum on a mission! I write about all sorts of things to do with disability but the two things I am most passionate about are access and inclusion. I started writing when I was campaigning for changing places toilets and more accessible air travel for disabled people but I now write about all sorts of things. I like to write advice style blogs which might help other people and I recently set up a Facebook community where parents can come to ask advice, share ideas, sell their old equipment or just have a moan!

Contents

If I could change just one thing about SEND services it would be to stop parents having to fight for everything. Whether it’s equipment, school placements, nappies, changing places toilets etc it seems like every day there is some battle to fight. And that is exhausting.

Find me online:

Blog: www.mumoam.co.uk
Facebook: www.facebook.com/mumoam
Twitter: www.twitter.com/mumsmissions
Instagram: www.instagram.com/themumonamission

Charlie’s Altered Life

Hi I’m Charlie and I blog at www.ouralteredlife.com about life with my twin boys. When they were born we were told that the left-hand side of Harrys face had never developed. He has no eye, eye socket, nostril or ear. He also has a short jaw.

We had no idea about his rare condition, Goldenhar syndrome, and so to say we were shocked is an understatement. The guilt overwhelmed me and over the next few years I imploded behind a painted smile as my mental health deteriorated and my marriage crumbled. When Harry was three, he was also diagnosed with autism and is non-verbal, so you can imagine that life is as challenging as it is rewarding at times.

His brother Oliver is unaffected by the syndrome but he does struggle with anxiety. Please rest assured that the blog is not a hotspot of whinging and depression, more the honest and often humorous side of a life less ordinary.
Through my blogs I hope to reach other parents who have found themselves living ‘an altered life’ and reassure those at the start of their journey that while, admittedly, it’s a tough roller-coaster, the view from the top can be amazing! I really hope you enjoy the blogs and join us on the journey.

Tania’s note: *Charlie is soon publishing a book that we’re going to be featuring with a fab giveaway when it’s out!
Find me online:

My Altered Life blog: www.ouralteredlife.com
Facebook: https://www.facebook.com/ouralteredlife/
Instagram: https://www.instagram.com/ouralteredlife/
Twitter: https://twitter.com/ouralteredlife

Sign up for SNJ new post alerts

SaveSave

About
Latest Posts

Tania Tirraoro

Founder, Co-Director at Special Needs Jungle

Founder & co-director of Special Needs Jungle. (She/Her) Autistic parent of two young autistic adults Devoted Grandma. National SEND advisor, journalist & author. Tania also runs a PR, web & social media consultancy, SocialOro Media.
She is a rare disease & chronic pain patient advocate with Ehlers Danlos syndrome.

Latest posts by Tania Tirraoro (see all)

Discover more from Special Needs Jungle

Subscribe to get the latest posts sent to your email.

Author: Tania Tirraoro

Founder & co-director of Special Needs Jungle. (She/Her) Autistic parent of two young autistic adults Devoted Grandma. National SEND advisor, journalist & author. Tania also runs a PR, web & social media consultancy, SocialOro Media. She is a rare disease & chronic pain patient advocate with Ehlers Danlos syndrome.

View all posts by Tania Tirraoro →