By Jonathan Beebee, Neurodisability Nurse Consultant Despite what many families are told, the SEND Code of Practice 2015 says a diagnosis isn’t needed to get support. It was intended to …
The Down Syndrome Act 2022 has been quietly making its way through the policy machine since it gained Royal Assent back in April 2022. It included a comprehensive call for …
Disabled children who need social care support face a confusing, outdated and unfair set of laws, which make it difficult, if not impossible, to access the care and support that …
Guest Post By Dr Andy Bilson, Emeritus Professor at the University of Central Lancashire We’ve written a number of times about Fabricated or Induced Illness, where parents of children with …
with Connor Johnston and Efa Jones, Law Commission Today we have a post about the Law Commission Review of Children’s legislation, by two of the people involved in it. Time …
If your child has an Education, Health and Care Plan (EHCP), were you offered a personal budget? Were you told during the assessment that they wouldn’t qualify for one? Or …
+++ Note this consultation closes on 6th September so don’t delay ++ A strong sense of despair and hopelessness comes over me whenever I am asked to respond to (yet …
Government consultations are like buses. No sooner has one gone by, than another arrives. In the same week the SEND Review consultation closed, the Department for Health & Social Care …
SNJ note: Prof. Brian Lamb OBE’s Lamb Inquiry in 2009 sparked the last SEND Reforms Green Paper. We’re delighted he’s here on SNJ to give his thoughts on what’s gone …
and Dr Ana Laura Aiello Disabled children and their families are one of the world’s most severely disadvantaged groups and the UK is no exception. Why should this be – …
“It’s not the despair. I can take the despair. It’s the hope I can’t stand.” This line from the film ‘Clockwise’ regularly runs through my mind when contemplating government reviews …
From what I can see, the independent review of children’s social care doesn’t seem to be much interested in finding out about the experiences of disabled children and their families outside the …
Last Friday we published our report #ProvisionDenied, that showed children and young people with SEND have had their needs and education “pushed to one side, for the convenience of the …
Ofsted’s second report looking at how the pandemic has impacted children’s education and wellbeing has added more weight to existing evidence showing huge disparities in the experience of children during …
with Professor Luke Clements and Dr Ana Laura Aiello SNJ Intro by Tania: Has your autistic child had a social care assessment of their needs? Either from the disabled children’s …
The current public health crisis will leave no aspects of our lives untouched. One of the most obvious consequences is the care and support which disabled children and young people …
with Matt Silver, Head Teacher, Shaftesbury High School, Harrow Recently I put out a call for positive stories of great practice in education, health and social care that we could …
with Liz Walker, Care Services Emergency Care Co-ordinator and Safeguarding Lead for Newlife the Charity for Disabled Children Social care can conjure lots of different images in parents’ minds. Often …
As if we’re not already drowning in enough bad news about how disabled children and their families are bearing the brunt of council and school funding cuts, today there’s fresh …
When you appeal to the First-tier Tribunal (FTT) SEND Tribunal about an issue surrounding a child or young person’s Education, Health and Social Care plan (EHCP), problems with the health and …
