Formerly known as the PDA Contact Group, the PDA Society aims to offer support, advice and information to anyone involved with an individual with PDA, whether suspected or diagnosed, child or adult.
The PDA Society is a voluntary organisation, overseen by a management committee, each of whom is a parent of a child with PDA.
The PDA Contact Group was originally set up in 1997 to put people with an interest in PDA in touch with each other, which we still do today through our discussion forum. The change in name to the PDA Society is a reflection that we are becoming more than a ‘contact group’ and see ourselves as the voice for PDA, running awareness campaigns and sharing information.
Our objectives include:
to raise awareness and understanding about the condition
to signpost people towards gaining a diagnosis
providing a telephone support line
sending people information through email or post about PDA
putting families in touch with each other locally
imparting good quality information about the condition as new research comes out
and providing people with information to set up their own local support groups.
We will fund these objectives through direct donations to the group, proceeds from awareness days, and any funding we manage to secure through grants/awards. We aim to become a registered charity in the future to be able to further those aims