Tilly’s “tried on” lots of diagnoses, but none fit her mystery ultra-rare condition
Happy Undiagnosed Children’s Day! Did you know that around 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare …
My SWAN journey from denial to motivation with my undiagnosed son
Today is Undiagnosed Children’s Day, a nationwide event aimed at increasing awareness of SWAN or Syndromes Without A Name (also known as an undiagnosed genetic condition). Around 6,000 disabled children are born every …
