fbpx
  • Home
    • Archive
  • About
    • Vision & Mission
    • Affiliations
    • Contact
    • SNJ Classified- Advertise with us!
    • SNJ’s Disclosure Policy
    • SNJ Training & Consultancy
    • About Tania
    • About Renata
    • About Guest Posts
  • Columnists
    • Our Columnists
      • About Angela
      • About Marguerite
      • About Matt
      • About Catriona
      • About Hayley Mason
      • About Siena
      • About Zoe
      • About Hannah Moloney
      • About Hayley
      • About SpeechBlog UK
      • About Malcolm
      • About Jo
      • About Ambitious About Autism Youth Patrons
      • About Nancy
      • About Bren
      • About Barbara
      • MrBoosMum
  • Health
    • Rare Disease
    • Mental Health
  • SEND FAQs
    • SEND Legal Answers
    • EHCP Answers
  • SEND Info
    • Distance education resources for children and young people with SEND
    • Latest Coronavirus information relevant for SEND families
    • EHCP Assessment: SNJ’s “Get started” Checklist
    • The SNJ/DfE SEND system Flow Charts
      • SNJ Flow Charts 2018: 1-4 together
      • SNJ Flow charts 2018 single charts
      • SNJ Annual Review Flow Chart
    • SEND reform posts
    • SEND reforms – legal links
  • Resources
    • Latest Coronavirus information relevant for SEND families
    • SNJ In Conversation
    • Webinars
    • Listings and Resources
    • SEND Research
    • Books & Products SNJ Recommends
    • England’s Local Offer websites
    • Glossary of SEND terms
    • SNJ’s Top Blogging Tips for groups and charities
  • LogIn/Join
  • Donate
Special Needs Jungle
News, info, resources & informed opinion about Special Educational Needs, disability, children’s physical and mental health, rare disease. Campaigning to #FixSEND
FacebookTwitterInstagramYouTubePinterestLinkedIn
 
  • Home
    • Archive
  • About
    • Vision & Mission
    • Affiliations
    • Contact
    • SNJ Classified- Advertise with us!
    • SNJ’s Disclosure Policy
    • SNJ Training & Consultancy
    • About Tania
    • About Renata
    • About Guest Posts
  • Columnists
    • Our Columnists
      • About Angela
      • About Marguerite
      • About Matt
      • About Catriona
      • About Hayley Mason
      • About Siena
      • About Zoe
      • About Hannah Moloney
      • About Hayley
      • About SpeechBlog UK
      • About Malcolm
      • About Jo
      • About Ambitious About Autism Youth Patrons
      • About Nancy
      • About Bren
      • About Barbara
      • MrBoosMum
  • Health
    • Rare Disease
    • Mental Health
  • SEND FAQs
    • SEND Legal Answers
    • EHCP Answers
  • SEND Info
    • Distance education resources for children and young people with SEND
    • Latest Coronavirus information relevant for SEND families
    • EHCP Assessment: SNJ’s “Get started” Checklist
    • The SNJ/DfE SEND system Flow Charts
      • SNJ Flow Charts 2018: 1-4 together
      • SNJ Flow charts 2018 single charts
      • SNJ Annual Review Flow Chart
    • SEND reform posts
    • SEND reforms – legal links
  • Resources
    • Latest Coronavirus information relevant for SEND families
    • SNJ In Conversation
    • Webinars
    • Listings and Resources
    • SEND Research
    • Books & Products SNJ Recommends
    • England’s Local Offer websites
    • Glossary of SEND terms
    • SNJ’s Top Blogging Tips for groups and charities
  • LogIn/Join
  • Donate
Author: <span>Miriam Ingram</span>
Home Articles posted by Miriam Ingram

Keep up to date with SEND: Sign up to new post alerts!

Author: Miriam Ingram

My role with SWAN UK involves raising awareness of our work and undiagnosed genetic conditions and I work closely with families to communicate their experiences as well as acting as the first point of contact for enquiries. I also enjoy organising events for SWAN UK families and managing SWAN UK’s social media accounts. I have a background in journalism, marketing and events and am passionate about giving people a voice and a platform to tell their stories.
Undiagnosed, but Dottie’s condition affects the whole family
Columnists, Rare Disease, Undiagnosed

Undiagnosed, but Dottie’s condition affects the whole family

By Miriam Ingram April 27, 2018 April 25, 2018

6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that is likely to remain undiagnosed. Having an undiagnosed …

Read more"Undiagnosed, but Dottie’s condition affects the whole family"
Tilly’s “tried on” lots of diagnoses, but none fit her mystery ultra-rare condition
Columnists, Rare Disease, special needs, Undiagnosed

Tilly’s “tried on” lots of diagnoses, but none fit her mystery ultra-rare condition

By Miriam Ingram April 28, 2017 April 26, 2017

Happy Undiagnosed Children’s Day! Did you know that around 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare …

Read more"Tilly’s “tried on” lots of diagnoses, but none fit her mystery ultra-rare condition"
My SWAN journey from denial to motivation with my undiagnosed son
Columnists, Guest Posts, Rare Disease, Undiagnosed

My SWAN journey from denial to motivation with my undiagnosed son

By Miriam Ingram April 29, 2016 April 27, 2016

Today is Undiagnosed Children’s Day, a nationwide event aimed at increasing awareness of SWAN or Syndromes Without A Name (also known as an undiagnosed genetic condition). Around 6,000 disabled children are born every …

Read more"My SWAN journey from denial to motivation with my undiagnosed son"
SNJ is run by volunteer parents. Everything on SNJ is free to use, but if you like what we do, and you want us to keep doing it, a small donation towards running costs would be really appreciated.
BE AN SNJ SQUAD PATRON!

National Coronavirus information for families and schools

Home education resources for learners with SEND

Your UK Parliament Volunteer of the Year

SNJ In Conversation

Search SNJ

advertise with us

get started checklist
Flow Charts
read SEND and medical research

Resource Hub

ARCHIVE

Recently on SNJ

  • If we truly want effective SENCOs, the government must act to make it possible
  • How the National Tutoring Programme can be a powerful tool to help SEND pupils during lockdownHow the National Tutoring Programme can be a powerful tool to help SEND pupils during lockdown
  • How to reclaim a positive mental attitude while parenting in a pandemicHow to reclaim a positive mental attitude while parenting in a pandemic
  • Lockdown 3: What does it mean for the rights of children with SEND?
  • More parents seeking children's mental health support in pandemic, with growing pessimism over support delaysMore parents seeking children’s mental health support in pandemic, with growing pessimism over support delays
  • Your gratitude messages that blew us away after a nightmare yearYour gratitude messages that blew us away after a nightmare year
  • Changing lives with BocciaChanging lives through Boccia
  • Blockbusting: What’s Happened to the £780m in Extra SEND Funding?Blockbusting: What’s Happened to the £780m in Extra SEND Funding?
  • 95% of decisions in favour of parents, but nobody wins at the SEND Tribunal95% of decisions in favour of parents, but nobody wins at the SEND Tribunal
  • MPs call on the government to act quickly on home education register
  • How has coronavirus affected your child’s access to speech and language therapy?
  • Who deserves a special SNJ thank you message for helping your disabled child through 2020?Who deserves a special SNJ thank you message for helping your disabled child through 2020?
  • NEW POST: £300 million for SEND school places. But how does the money on the spending review improve inclusion and equality?£300 million for SEND school places. But how does it improve inclusion and equality?
  • How is Ofsted supporting & evaluating SEND provision during the pandemic?
  • We need more awareness that pandemic life is far from an equal experienceWe need more awareness that pandemic life is far from an equal experience

Help SNJ keep going!

SEND
SEND Teaching
AUTISM
MENTALL HEALTH
health
DISABILITY
POST16
COLUMNISTS
ASK IPSEa

Resources

  • A Family Companion
  • National Autistic Society
  • Children’s Legal Centre
  • The Breaks for Carers of Disabled Children Regulations 2011
  • HSR Psychology
  • IPSEA
  • Rosy & Bo Buzz – a look at the Rosy side of life
  • PDA Society
  • Where You Stand
  • Centre for ADHD & Autism Support
  • Home|
  • Cookie Policy|
  • Contact|
  • Privacy|
  • Terms of Service|
Back to Top
FacebookTwitterInstagramYouTubePinterestLinkedIn
Copyright Special Needs Jungle Ltd 2008-2020
All Rights reserved, Special Needs Jungle
Powered by Fluida & WordPress.
s2Member®