Last Friday saw what's almost certainly the biggest awareness day ever - Rare Disease Day.
As you have seen,we've done our best at Special Needs Jungle to support the day.
Rob wrote a brilliant piece for us on Friday so if you missed that or any of our other posts, you can find them linked below, along with a look back as the other stories we liked this week. Enjoy our Sunday Storify and have a great week! (And if you want to add your best special needs post from the last week, please add it in the comments!)
http://storify.com/SpcialNdsJungle/great-stories-and-one-huge-event-last-week
Tania Tirraoro
Founder, CEO at Special Needs Jungle
Founder of Special Needs Jungle. Parent of two young adults with autism. Tania is a member of the Whole School SEND Expert Reference Group for SEND Leadership, the Ofsted SEND Inspections Stakeholders Group, and sits on the Advisory Board of the Royal Holloway, University of London Centre of Gene and Cell Therapy.
She is also an experienced broadcast and print journalist & author. Tania also runs a PR, web & social media consultancy, SocialOro Media. She is a Rare Disease & chronic pain patient advocate with Ehlers Danlos syndrome.
She is also an experienced broadcast and print journalist & author. Tania also runs a PR, web & social media consultancy, SocialOro Media. She is a Rare Disease & chronic pain patient advocate with Ehlers Danlos syndrome.
Latest posts by Tania Tirraoro (see all)
- Exemplary Practice: Creating a positive future of meaningful work for young people with SEND - October 18, 2019
- Ofsted finds home education is most often not a choice – and off-rolling is a key culprit - October 15, 2019
- The DfE wants to stop LAs filling SEND funding gaps - October 14, 2019
I wrote this one stuck in hospital having a bone scan http://wp.me/p2OiOj-1JV
and here’s my contribution called “rare” http://touchandtickle.blogspot.co.uk/2014/02/rare.html