Last Friday saw what's almost certainly the biggest awareness day ever - Rare Disease Day.
As you have seen,we've done our best at Special Needs Jungle to support the day.
Rob wrote a brilliant piece for us on Friday so if you missed that or any of our other posts, you can find them linked below, along with a look back as the other stories we liked this week. Enjoy our Sunday Storify and have a great week! (And if you want to add your best special needs post from the last week, please add it in the comments!)
http://storify.com/SpcialNdsJungle/great-stories-and-one-huge-event-last-week
Founder, Co-Director at Special Needs Jungle
Founder of Special Needs Jungle. (She/Her) Parent of two young adults with autism. New grandma. Tania, who is autistic, is a leading SEND advisor, working with the Special Education Consortium, Ofsted, and Whole School SEND. She is also an Advisory Board member of the Royal Holloway, University of London Centre of Gene and Cell Therapy and an Editorial Board member of Springer Nature Gene Therapy journal.
Tania is an experienced broadcast and print journalist & author. She also runs a PR, web & social media consultancy, SocialOro Media.
Tania is a rare disease & chronic pain patient advocate with Ehlers Danlos syndrome.
Tania is an experienced broadcast and print journalist & author. She also runs a PR, web & social media consultancy, SocialOro Media.
Tania is a rare disease & chronic pain patient advocate with Ehlers Danlos syndrome.
Latest posts by Tania Tirraoro (see all)
- SEND Minister denies the Government is aiming to cut EHCPs by 20% with an emphatic, but unconvincing, explanation - September 22, 2023
- A new SEND minister NOW? Disabled children deserve better than to be a government testing ground for ambitious MPs - August 31, 2023
- Exclusion must be a last resort says EHRC as they support a family to justice over their disabled child’s treatment - August 2, 2023
I wrote this one stuck in hospital having a bone scan http://wp.me/p2OiOj-1JV
and here’s my contribution called “rare” http://touchandtickle.blogspot.co.uk/2014/02/rare.html