Showcasing Rare Diseases in Birmingham

A shout-out for a an event for rare disease patient groups and for professionals interested in the field.

Findacure Midlands Networking Event

On 22nd of October, Birmingham Children Hospital is hosting The Midlands Rare Disease Showcase event aimed at professionals, patient organisations and pharmaceutical companies.

The day-log event, run by the Findacure Foundation is to celebrate progress in the rare disease sector in the heart of England. It's aimed at fostering collaborations between rare disease patient groups and their professional counterparts.

If you are a member or representative of a rare disease patient group or are involved in a professional capacity, and are interested in attending, do sign up. 

By bringing together a range of patient groups, pharmaceutical and biotech companies, clinicians and researchers, we hope to inspire new, innovative and lasting collaborations to the benefit of rare disease patients across the UK.

I will be there, along with SNJ columnist, Marguerite Haye with a stand, we're delighted to say.

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Tania Tirraoro

Founder, CEO, Editor at Special Needs Jungle

Founder of Special Needs Jungle. Parent of two young adults with autism. Tania is a member of the Whole School SEND Expert Reference Group for SEND Leadership, the Ofsted SEND Inspections Stakeholders Group, and sits on the Advisory Board of the Royal Holloway, University of London Centre of Gene and Cell Therapy.
She is also an experienced broadcast and print journalist & author. Tania also runs a PR, web & social media consultancy, SocialOro Media. She is a Rare Disease & chronic pain patient advocate with Ehlers Danlos syndrome.

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Latest posts by Tania Tirraoro (see all)

• New children’s minister Vicky Ford MUST sign off on continued Ofsted/CQC SEND inspections - February 18, 2020
• Special needs parenting: Love, determination and fury - February 14, 2020
• Ofsted’s grim verdict on SEND in England - January 22, 2020