A shout-out for a an event for rare disease patient groups and for professionals interested in the field.
Findacure Midlands Networking Event
On 22nd of October, Birmingham Children Hospital is hosting The Midlands Rare Disease Showcase event aimed at professionals, patient organisations and pharmaceutical companies.
The day-log event, run by the Findacure Foundation is to celebrate progress in the rare disease sector in the heart of England. It's aimed at fostering collaborations between rare disease patient groups and their professional counterparts.
If you are a member or representative of a rare disease patient group or are involved in a professional capacity, and are interested in attending, do sign up.
By bringing together a range of patient groups, pharmaceutical and biotech companies, clinicians and researchers, we hope to inspire new, innovative and lasting collaborations to the benefit of rare disease patients across the UK.
I will be there, along with SNJ columnist, Marguerite Haye with a stand, we're delighted to say.
She is also an experienced broadcast and print journalist & author. Tania also runs a PR, web & social media consultancy, SocialOro Media. She is a rare disease & chronic pain patient advocate with Ehlers Danlos syndrome.
- Family Fund grants: the who, what and how to apply - September 29, 2020
- The dyslexia ‘battle’ and middle-class mums? I think we need to look at the broader picture - September 25, 2020
- Coronavirus guidance: What mainstream settings should do to ensure the inclusion of disabled children - September 14, 2020
