When there are few specialists and no medical pathways to help your child’s condition, you can feel like a pinprick in the priority of health care services. But your loved-one’s health is just as important …
Many of us know what it’s like to be questioned intrusively by complete strangers because of our child’s disability – whether it’s their behaviour or an obvious physical difference that’s “wrong”. …
How many of us have stayed home rather than face the potential ordeal of your autistic child having a melt-down at an unfamiliar place or event? How do you get …
Tania’s note: Jo Grace is back to tell us about something you may like to get involved with! Parallel London is the world’s first fully inclusive fun push/run event being …
Earlier this year, we hosted a post about ‘One page profiles and EHC plans the Wiki way’. It’s been very popular and I know that some local authorities have been following …
The BS Tweets story did rather set the SEND world alight with many posts from blogs and articles in the mainstream media (where SNJ was quoted or I was interviewed a …
As parent carers we often measure our successes in the little victories we achieve on a day to day basis. They may not seem significant to some, but to us …
Tania writes: A few years ago, I ran a guest post from Jo Grace who was crowdfunding to raise funds to launch a Sensory Stories project. I was happy to …
The Department for Education recently published some “user experience” research into the SEND reforms to help local areas with gathering family feedback. Ask Research produced a report, Mapping user experiences …
Today is Undiagnosed Children’s Day, a nationwide event aimed at increasing awareness of SWAN or Syndromes Without A Name (also known as an undiagnosed genetic condition). Around 6,000 disabled children are born every …
Today I am delighted to introduce Sarah Down who has agreed to write a guest post for us. Sarah is mother to a lively four and a half year old …
We started the week with a heart-felt letter from a mum about her disabled child. Just as I was thinking I wouldn’t bother with a post for today, I checked SNJ’s …
Puberty with any teenager can be a tricky business and a time of immense change for everyone in the family. If your child has special needs on top of that, …
I was recently contacted by a mum of a child with additional needs, who expressed sadness to me over her pregnant friend’s attitude to the possibility of having a baby …
Today we have a lovely guest post from a mum, Michelle Myers, who writes a blog called A Slice of Autism. As the title suggests, Michelle has a son with …
For most adolescents, moving into adulthood is a natural progression and the move from school to a job or to further or higher education is an expected rite of passage. …
Tania writes: Today I’m so pleased to bring you a guest article from a highly respected head teacher of a school for children with complex autism in Surrey. Justin Price …
Tania writes: Ask anyone who’s been through England’s new special educational needs statutory assessment as part of the EHCP process, and you’re more likely than not to hear a sorry …
Last year, I was introduced to an exciting new concept for “living” One Page Profiles – using video and other media and updateable online using a Wiki Wikis are simple, …
How many of us spend significant amounts of our time taking our children to medical appointments, often many miles from home? Often several appointments at the same clinic are staggered …
