Autism Understanding Day – why hasn’t it caught on yet?
Hayley asked an interesting question in her Down’s Syndrome post last Friday – do we need awareness days? The answer is clearly ‘yes’ for all sorts of reasons, especially when …
Category: Campaigns
World Down Syndrome Day 2014: Do we really need awareness days?
‘There’s an awareness day for everything nowadays’ the rather jaded GP muttered in my direction recently, in a tone that hinted ‘leave me out of it please.’ ‘It’s awareness day …
Rare Disease Day 2014: the largest awareness campaign ever, what’s next?
I’ve been involved in the recognition and celebration of Rare Disease Day, which is today, for the past five years. The main objective of the day is to raise awareness …
The Special Needs Tweek in Review – add yours too!
Stories we’ve tweeted or retweeted that we thought were interesting – and you might too. So if you missed them, we’ve rounded them up in a Storify. Enjoy
Help for parents worried about their child’s development
It’s always a scary time when you realise your child isn’t developing at the same rate as the children of other parents you know. Sometimes it’s obvious, other times it’s …
The Disability Abortion Lie – when choice seems like no choice
It’s easy to assume that the moral dilemma of whether to abort your unborn baby that you’ve learned has a disability, is confined to a shouty debate between pro-choicers on …
Join us & back Jane’s campaign to improve legal rights in SEN Bill
“We define ourselves as a society by the priorities we choose” Jane Raca Earlier this year, disabled rights campaigner, Jane Raca and I were speakers on the same panel regarding …
Anti-Bullying Week 2013: The Future is Ours. Safe, Fun and Connected
This is a post you need to read and share if you have children who are online, whether they have SEN or not. It’s about Anti-Bullying Week and while this …
When Tania went to #BlogFest and other stories
First came the bad news. Debs, who was due to be my ‘carer’ for the day, wheeling me around the venue, had been felled by the lurgy. Not just any old …
Add the power of your voice to #ThisIsMyChild
As you know, Special Needs Jungle is delighted to be involved with the MumsNet #ThisIsMyChild campaign, reviewing its inaugural blog hop and if you blog (and if not, why not?) …
NAS petition – Single point of appeal for EHC Plans
The NAS has launched a petition calling on the Government to amend the Children and Families Bill to create a single point of appeal for challenging provision in Education, Health and Care Plans. This …
#ThisIsMyChild MumsNet Special Needs campaign
Tania writes… MumsNet have today launched a new “myth-busting and awareness-raising” campaign called #ThisIsMyChild. It’s been launched in response to requests from MumsNetters and supported by input from some of the …
Today is Pathological Demand Avoidance (PDA) Awareness Day
The PDA Contact Group have guest written a post for us – if you are experiencing this with your child, please get in touch. PDA is a very unknown, rarely …
Making the Disabled Children’s Charter a health priority
As you are hopefully aware, the beginning of April saw a massive shake-up in the NHS and the creation of GP-led Clinical Commissioning Groups as well as Health and Wellbeing …
Our son’s rare disease sparked a search for answers- and support
Tania writes: I am often contacted by desperate parents searching for help with finding the special needs solutions for their children. It’s something that Helen never imagined herself having to do. …
Research backs Emma’s FACS battle
One of my fellow special needs mums, whom I met over Twitter, Emma Murphy, is spearheading a campaign highlighting the emerging dangers of taking the Epilepsy drug Sodium Valproate (Epilim) …
Keep Us Close – Scope’s campaign for better local disability services
The charity, Scope, which works to help children and families affected by disabilities, is currently campaigning for improvements to the Children and Families bill, which if you re a regular …
Stop the DLA Takeaway campaign – your help needed
Stop the DLA Takeaway campaign – Contact a Family and The Children’s Trust need your help The Children’s Trust, Tadworth and Contact a Family would like to hear from parents …
It’s Dyspraxia Awareness Week – be alert for early signs
The Dyspraxia Foundation is calling on families to be alert to the early signs of the condition in their awareness week campaign from 14th – 20th October 2012. Chair of …
SNJ on MumsNet – The Paralympic legacy debate
So, here I am, back from Sweden after what was an amazing meeting for people with limb disabilities from 12 different countries. It’s not easy to travel with a disability …
